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Supporting Students with Special Health Care Needs


Supporting Students with Special Health Care Needs

Guidelines and Procedures for Schools, Third Edition
Volume Editors: Stephanie M. Porter M.S.N, RN, Patricia A. Branowicki, Judith S. Palfrey   Illustrator: Marcia Williams   Foreword Author: Betsy Anderson   Invited Contributors: Carole C. Atkinson, Karen Baldassari, Cheryl Cahill, Sarita Chung, Elena Daha-Slakova, Frances J. Damian, Emily Jean Davidson, ReRe Dawley, Michele DeGrazia, Mary Jo Dunleavy, Sara Einis, Matthew Engel, Ann Marie Foustoukos, Eva Gomez, Rosemary H. Grant, Kathryn Gustafson, Patti Hackett-Hunter, Lynn A. Hook, Elizabeth Ann Houghson Ph.D., Tara Kelly, Jenny Kinne, Kerry Matthews, Maureen McAndrew, Susan McNamara, Stephen G. Monteiro, Christine M. Obusek, Dorothy R. Page, Fiona Paul, Julia M. Perkins, Lauren Perlman, Gail Potter-Bynoe, Patricia Pratt, Sandra Quigley, Michelle Raymond, Kathleen Reardon, Patricia Reidy, Dennis Rosen, Patricia Saji, Patricia Scanlon, Timothy Sindelair, Abhinash Srivatsa, Lauren E.B. Stone, Elizabeth Tannebring, Karol G. Timmons, Erin Ward, Mark Ward, Karen Y. Warman, Patience H. White M.D., M.A.

ISBN: 978-1-59857-063-2
Pages: 520
Copyright: 2014
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Size:  8.5 x 11.0
Stock Number:  70632
Format:  Layflat
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Essential for every school health office, this fully illustrated reference is the ultimate guide to caring for and supporting children with special health care needs in educational settings. A comprehensive update of the classic guide school nurses trust, this authoritative book compiles the latest guidelines on working with students with special health care needs, step-by-step procedures for using today's medical technologies, and access to more than 50 reproducible planning forms and checklists. Experts from nursing, medicine, and parent advocacy across the country reviewed and vetted the content, so you can implement the techniques and guidelines with confidence. A must for school nurses and related professionals, this practical reference tool will help schools deliver the services and supports that promote health, safety, and success for children with special health care needs.


THE LATEST ON:
  • Supporting students with a wide range of special care needs, such as respiratory concerns, neurological issues, diabetes, allergies, and bladder and kidney issues
  • Safely and skillfully using medical technologies, including feeding tubes, insulin administration devices, baclofen pumps, ventilators, ostomies, intravenous lines, oxygen and more
  • Planning supportive classrooms that meet legal requirements and are well prepared for both everyday care and medical emergencies
  • Collaborating with a student's whole health care team to create a family-centered, child-centered health care plan
  • Meeting the needs of culturally and linguistically diverse families
  • Facilitating a student's smooth transition from the pediatric to adult health care systems

PRACTICAL MATERIALS: More than 100 high-quality illustrations, plus printable online forms and checklists to ensure organized record keeping, training, and program planning.

With 50+ reproducible materials!
  • Dozens of skills checklists for specific medical technologies
  • Entrance Process Checklist
  • Individualized Health Care Plan forms
  • Emergency Plan form for students
  • One-Page Portable Medical Summary Template
  • Latex Allergy Checklist for Schools
  • School and Camp Medication Order
  • and more!
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Reviews

Review by: Donna Mazyck, Executive Director, National Association of School Nurses
“For years, school nurses have used earlier editions of [this book]. The third edition … will enable school nurses continued access to this resource.”
Review by: J. Carolyn Graff, Boling Center for Developmental Disabilities, University of Tennessee Health Science Center
“An excellent resource for nurses, teachers, and all professionals working with children with special health care needs! A comprehensive, insightful, and practical reference.”
Review by: Marilyn Krajicek, University of Colorado Denver College of Nursing
“An excellent evidence-based resource book … will serve to support school nurses and other health care professionals in working to provide a safe and appropriate environment for children with special health care needs and their families.”
Review by: Deb Robarge, Health Center Director, Indiana School for the Deaf
“Should be the go-to reference book for all nurses who care for our students with special health care needs, especially those assisted by medical technology.”
About the Reproducible Forms
About the Editors
Contributors
Foreword Betsy Anderson
Preface
Acknowledgments
How to Use This Book
Disclaimer

I  Children and Youth Assisted by Medical Technology in Educational Settings
  1. Caring for Children with Special Health Care Needs in Schools and the Community
  2. Ann Marie Foustoukos, Elizabeth Tannebring, Elena Daha-Slakova, Maureen McAndrew, Emily J. Davidson, and Lynn Hook
    Care Coordination for the Child Assisted by Medical Technology
    Psychosocial Issues in Caring for the Child Assisted by Medical Technology
    Children Assisted by Medical Technology in the School Setting
    Summary
    References
  3. Creating a Positive School Experience: Perspectives from the Team
  4. Erin Ward and Mark Ward
    Who Are the Students that Are Assisted by Medical Technology?
    The Complex Needs of the Students Who Use Medical Technology
    Meeting Social and Emotional Needs in the School Setting
    The School Experience for Students Who Are Assisted by Medical Technology and for Their Classmates
    Building Comprehensive and Positive School Teams
    Summary
    References
    Suggested Resources
  5. Legal Issues in the Education of Students with Special Health Care Needs
  6. Matthew Engel, Patricia Saji, and Timothy Sindelar
    Individuals with Disabilities Education Act
    Rehabilitation Act of 1973 (PL 93-112), Section 504
    Americans with Disabilities Act of 1990 (PL 101-336) and Amendments
    The Family's Role in Ensuring the Rights of Their Child
    Other Laws, Regulations, and Standards
    Summary
    References
  7. The Child with Special Health Care Needs: Planning for Care in the Educational Setting
  8. Christine M. Obusek, Dottie Page, Karen Baldassari, Judith S. Palfrey, and Stephanie M. Porter
    Utilizing Family-Centered Care and the Collaborative Health Care Team
    Identification of the Student with Special Health Care Needs
    Roles of the Student's Assessment and Planning Team Members
    Health Assessment and Planning: The Individualized Health Care Plan
    Selected Resources
    Web Resources
    Appendixes
    • Entrance Process Checklist
    • Individualized Health Care Plan: Brief Version
    • Individualized Health Care Plan: For the Student with Complex Health Issues
    • Physician's Order for Specialized Health Care Procedure
    • Individualized Health Care Plan: Systems-Based Plan
    • Nursing Systems-Based Interview and Physical Assessment for the School Nurse
    • Emergency Plan (Student Specific)
  9. Preparing Students for Health Care Transition: Strategies for Youth, Families, and School Nurses
  10. Patti Hackett-Hunter and Patience H. White
    Preparing for Health Care Transition: A Pivotal Role for School Nurses
    Health Care Transition Preparation Before the Transfer to Adult Health Care: The Role of and Opportunities for School Nurses
    Case Examples: Meet Four Students with Different Long-Term Health Issues
    Educational Domains and Health Considerations
    One-Page Portable Medical Summary
    Make-My-Day Documentation
    Texting, Tweeting, and "Talking" with Students via Social Media as Potential Adjuncts to Clinical Care
    Summary
    References
    Appendixes
    • Six Core Elements for Health Care Transition Improvement
    • Mnemonic for Health Issues for Youth
    • Transitions: Changing Roles for Youth
    • Transitions: Changing Roles for Families
    • One-Page Portable Medical Summary Template
    • One-Page Portable Medical Summary Example
  11. Safe Transportation of Children with Special Health Care Needs
  12. Kathryn Gustafson and Michele DeGrazia
    Applicable Laws, Regulations, and Transportation Plans
    Selecting a Child Safety Restraint System
    Age-Specific Considerations
    Other Considerations Relative to Transportation
    Summary
    References
    Web Resources
  13. Infection Prevention and Control in the School Setting
  14. Gail Potter-Bynoe and Patricia Scanlon
    Infection Transmission
    Infection Prevention and Control: Standard Precautions
    Special Considerations in School Settings
    Summary
    References
    Web Resources
  15. Allergies to Food and Latex in the School Setting
  16. Karol G. Timmons
    Food Allergy
    Latex Allergy
    Legal Protections for Children with Food and Latex Allergies in Schools
    Essentials in Planning
    Summary
    References
    Web Resources
    Appendix: Latex Allergy Checklist for Schools
  17. Disaster Planning for Children with Special Health Care Needs and Disabilities
  18. Stephen G. Monteiro, Sarita Chung, and Frances J. Damian
    Vulnerabilities of Children
    Overview of Emergency Preparedness Phases
    Case Scenario: Shelter in Place
    Case Scenario: Evacuation
    The Role of the School Nurse
    Importance of Home Preparedness for Families of Children with Special Health Care Needs
    Summary
    References
    Additional Resources
    Appendixes
    • Hazard and Vulnerability Analysis
    • Roles and Training Levels
  19. Working with Families and Students of Diverse Cultures and Languages
  20. Eva Gómez
    Understanding Health Disparities
    Case Scenario: A Perspective of a Child with a Disability
    Understanding Families in a Cultural Way
    Case Scenario: The Unique Perspective of a Family Who Has a Child Assisted by Medical Technology
    Summary
    References
II  Guidelines for Care
  1. Tube Feeding
  2. Julia Perkins and Fiona Paul
    Gastrointestinal System
    Gastrostomy Tube
    Skin Level Gastrostomy Tubes
    Nasogastric Tube
    Jejunostomy Tube
    Nasojejunal Tube
    Suggested Resources
  3. Intravenous Lines
  4. Lauren E.B. Stone and Patricia Pratt
    Circulatory System Structure and Function
    Central Venous Catheter
    Periphrally Inserted Central Catheter
    Suggested Resources
  5. Dialysis
  6. Elizabeth Ann Hughson and Janet MacDonald
    Urinary System Structure and Function
    Hemodialysis
    Peritoneal Dialysis
    Suggested Resources
  7. Clean Intermittent Catheterization
  8. Rosemary Grant and Mary Jo Dunleavy
    Urinary System Structure and Function
    Clean Intermittent Catheterization
    Suggested Resources
  9. Ostomy Care
  10. Rosemary Grant and Sandra Quigley
    Gastrointestinal System Structure and Function
    Ostomies for Elimination
    Colostomy
    Ileostomy
    Urostomy
    Suggested Resources
  11. Respiratory System Structure and Function
  12. Lauren Perlman and Dennis Rosen
    Disorders Affecting the Respiratory System
    Supplemental Oxygen Use
    Tracheostomy
    Tracheal Suctioning
    Tracheostomy Tube Changes
    Manual Resuscitation Bag
    Nose and Mouth Suctioning
    Nebulizer Treatments
    Mechanical Ventilators
    Continuous Positive Airway Pressure and Bilevel Positive Airway Pressure
    Mechanical Insufflation-Exsufflation
    Pulse Oximetry
    High Frequency Chest Wall Oscillation
    Speaking Valve for Tracheostomy Tube
    Suggested Resources
  13. Diabetes
  14. Sara Einis, Jenny Kinne, Michelle Raymond, Kathleen Reardon, Abhinash Srivatsa, and Karen Y. Warman
    An Introduction to Diabetes Mellitus
    Types of Diabetes
    Insulin
    Insulin Delivery Systems
    Insulin via Vial and Syringe
    Insulin Pens
    Insulin Pumps
    Carbohydrate Counting
    Blood Glucose Testing
    Ketone Testing
    Glucagon Administration
    Common Diabetes Problems
    Diabetes Emergencies
    Planning for Disasters and Emergencies
    Tools for Effective Diabetes Management in School
    Suggested Resources
    Additional Resources for Diabetes Nutrition
    Appendixes
    • Basal-Bolus Therapy Teaching Sheet
    • Healthy Snacking for Children with Diabetes
    • School and Camp Medication Order
  15. Neurological Issues
  16. Tish Reidy, ReRe Dawley, Tara Kelly, Kerry Matthews, Susan McNamara, Cheryl Cahill, and Carole Atkinson
    Seizures
    DIASTAT
    Vagus Nerve Stimulation
    Ketogenic Diet
    Hydrocephalus: Shunts and Endoscopic Third Ventriculostomy
    Intrathecal Baclofen Pump
    Suggested Resources
Glossary
Index
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